CURE SYNGAP1 | SYNGAP1 Stories Episode 39 & 40 Short
2:22
CURE SYNGAP1 | SYNGAP1 Stories Episode 39 & 40 Short
32 views1 month ago
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Rese…
SYNGAP1 is a rare genetic disorder caused by mutations in the SYNGAP1 gene.
1:01
SYNGAP1 is a rare genetic disorder caused by mutations in the SYNGAP1 gene.
21 views4 months ago
YouTubeThe Trouble With Toby
🐁🔬🧬SYNGAP1 gene's role in cognitive function #neuroscience #genetics #cognitivefunction
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🐁🔬🧬SYNGAP1 gene's role in cognitive function #neuroscience #genetics #cognitivefunction
2K viewsFeb 17, 2025
YouTubeScience X
​¡La ciencia y la experiencia de nuestros pacientes llegaron al Congreso ILAE-IBE en Lima! 🇵🇪🔬🧬​
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​¡La ciencia y la experiencia de nuestros pacientes llegaron al Congreso ILAE-IBE en Lima! 🇵🇪🔬🧬​
155 views1 week ago
YouTubeSyngap1 Argentina
Toby has Syngap1. A rare genetic disorder. Could this treatment help other children?
3:00
Toby has Syngap1. A rare genetic disorder. Could this treatment help other children?
123 views4 months ago
YouTubeThe Trouble With Toby
Can you help Olly get to Mexico? Olly, from the UK, has Syngap1, the same genetic disorder as Toby.
1:39
Can you help Olly get to Mexico? Olly, from the UK, has Syngap1, the same genetic disorder as Toby.
1.3K views1 week ago
YouTubeThe Trouble With Toby
SYNGAP1 Synaptic Ras GTPase Activating Protein 1
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SYNGAP1 Synaptic Ras GTPase Activating Protein 1
8 months ago
YouTubeStory Lens
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CURE SYNGAP1 | SYNGAP1 Stories Episode 38 Short
11 views3 months ago
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Rese…
2:06
SRF | Why Attend CURE SYNGAP1 Conference, SYNGAP1 Stories Ep 038 Clip
284 views7 months ago
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Rese…
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El diagnóstico llega, pero la respuesta la construimos juntos. ❤️ En este video recorremos los años en que conocimos a quienes hoy forman parte de nuestra familia Syngap1. Cada uno llegó en un momento diferente, con miedos e incertidumbres, buscando una mano que los sostuviera y un camino a seguir. Sabemos que recibir el nombre de una enfermedad poco frecuente es abrumador, pero acercarte a una organización de pacientes es pasar de la soledad a la red. Es encontrar a otros que ya caminaron lo qu
1K views2 months ago
TikToksyngap1.argentina
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CURE SYNGAP1 | Giving Tuesday 2025 Video Montage
82 views6 months ago
YouTubeCURE SYNGAP1, 501(c)(3) fka SynGAP Rese…
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One Question That No One Could Ignore
2 months ago
YouTubeThe Advocacy Intelligence Network Shorts
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Pokojná hodinka v Tesco: Zvončeky a sklamania
154.2K views9 months ago
TikTokmisko_syngap1
Magische Disneyland Ervaring voor Kinderen met Beperkingen
129.3K viewsDec 14, 2024
TikTokmistereasyyy
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Zeen Mobility Device on Instagram: "🎉 Zeen User of the Month: Kyle 🌟 Kyle is an inspirational young man who is living with rare genetic condition called SYNGAP1. With the Zeen’s secure seatbelt, upright support, and built-in fall protection, Kyle is empowered to safely practice walking, build strength in his legs, and move more freely throughout his home and community. “If it wasn’t for the Zeen keeping him safe,” his mom Kelli shares, “Kyle would not be able to practice independent mobility.”
107.2K views7 months ago
Instagramgo_zeen
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Understanding SynGAP: Part 1 Research Questions
165.3K viewsAug 21, 2021
TikTokcuresyngap1
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My daughter (9 years old but mentally & developmental at a 2yr old) has a genetic mutation called SNYGAP1, we’ve been to autism specialists & unfortunately they cannot diagnose with it since it’s more than that but she mirrors Autism kids (she lands in the “possible”) she is very smart when it comes to remembering places she loves, she’ll remember how to get there BUT she is non verbal. She will throw what we call tantrums & very long & loud ones because she gets frustrated that we can’t figure
35.6K views8 months ago
TikTokxogrizzy
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kľudne môžeme pokračovať #syngap1 #epilepsy #nonverbalautism #mockery #shame
14.3K views4 months ago
TikTokmisko_syngap1
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SynGap1 is a rare syndrome that causes seizures, developmental delays, hypotonia, and intellectual disability. It is a spectrum disorder and this sweet 22 month old seems to have a fairly mild case. He will, however, need many therapies. Please follow him on IG @greysonrow and support him and his sweet family. #syngap1 #curesyngap #syngap1foundation #greysonrow #syngap1awareness #shiningbright #brightfuture #raresyndrome #lovethisboy #beautifulboy @Syngap1 Foundation @SynGAP Research Fund
64.7K viewsOct 24, 2023
TikTokluna.shining.brig
2:14
Journey to Heathrow: A Family Adventure with British Airways
27.2K views2 months ago
TikToktroublewithtoby
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