New Delhi: Feeling fear is a normal and essential part of our lives. Fear protects us from danger and keeps us alert, but have you ever wondered what kind of life a person would live if they had no ...

The father of a girl with a rare brain disease has said her recovery has been "incredible" after she regained the ability to walk again. Sienna, four, was diagnosed with acute necrotising encephalitis ...

She's known as the First Lady of Rock, a pioneering singer-songwriter whose distinctive mezzo soprano voice rang out on chart-topping hits, including ‘70s classics “You’re No Good” and “Blue Bayou.” ...

Ultragenyx’s Rare Bootcamp gives families a roadmap to help drive research and develop new treatments for rare diseases.

Lozano is a rare disease mom, neuroscience Ph.D. candidate at UC Davis, and board member for the PURA Syndrome Foundation. In May, a historic moment in science and medicine was captured in a single ...

The model opened up about her ex-husband's condition almost a year after his diagnosis.

The Food and Drug Administration on Tuesday approved a generic medication for a rare brain disorder, while walking back suggestions by President Donald Trump and other administration officials that ...

Our inbox has been flooded with emails from viewers and readers who told us how their lives have been affected by rare diseases. Here are some of the stories we received. Living with a rare disease ...

On the eve of Onam, the most joyous festival in India's Kerala state, 45-year-old Sobhana lay shivering in the back of an ambulance, drifting into unconsciousness as her family rushed her to a medical ...